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my prognosis from the doctor is ... i have aboslutley no idea what they were telling me.

submitted by heytheremyfriends to TellTalk 7 monthsOct 17, 2023 22:54:48 ago (+24/-0)     (TellTalk)

I went to a doctor and he was very ... confusing? I came in, did a PFT and an MRI with/without contrast. So first, the raw numbers. My FEV1 is 25% - 32%, FVC is around 32%, BUT FEV1/FVC is 75% - 85%. They also told me I had bullous emphysema end stage, combined with idiopathic pulmonary fibrosis. They suspect the fibrosis caused the emphysema. There are also multiple multi cm holes in the lungs, the biggest one being between 7 - 10 CM.

Based off the readings and their latest MRI, my lungs look a combination of swiss cheese mixed with a very dirty, torn up used sponge. The fact they even work at all anymore is a testament to God that he can work miracles.

This also coincides with the much more severe symptoms ive been noticing. They have been very subtle but a lot of them are definitely synonymous with increasing severity. The first is hypoxia in the morning. I dont drink alcohol but i wake up with a massive hangover every day. That's assuming i wake up on time at all, a lot of times my body is too exhausted to get up before 930. Not even a year ago, i could easily wake up at 7, now its a struggle to wake up before 930. When I do wake up, i feel extremely dizzy, as if im disoriented. The last symptom is that i can almost feel like my body is eating itself. It's more noticeable in the lower lung areas, but it feels like massive abdominal soreness, combined with increasingly painful pleurisy. Walking up a flight of stairs feels like i just did a massive set of crunches.

At this point, Im not entirely too sure what can be done, or if anything can even be done at all. I've come to peace that i will most likely die at a young age. I won't let it take me down without a fight, but


33 comments block


[ - ] DestroyerofSquirrels 0 points 7 monthsOct 17, 2023 23:16:48 ago (+0/-0)

Fuck, stay strong brother.

[ - ] canbot 0 points 7 monthsOct 17, 2023 23:47:35 ago (+0/-0)

What does "not going down without a fight" mean to you?

Are you simply going to go from doctor to doctor looking to be saved?

Do you have any interest in trying to create an artificial external lung? That is a project I bet a lot of people would be interested in joining. If you are motivated enough to spearhead something like that you could get funding, set up a lab, attract college students who need a dissertation and experience.

I'm not a college student, but I would deffinitely join the project.

[ - ] StealthNinjaTaliban 0 points 7 monthsOct 17, 2023 23:49:09 ago (+0/-0)

Sad for you.

[ - ] deleted 0 points 7 monthsOct 18, 2023 00:42:22 ago (+0/-0)*

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[ - ] SumerBreeze 0 points 7 monthsOct 18, 2023 00:51:46 ago (+0/-0)

Are you sleeping in a well-ventilated area? Do you have fresh air from the outside flowing during your sleep?

[ - ] deleted 0 points 7 monthsOct 18, 2023 00:52:09 ago (+0/-0)

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[ - ] deleted 0 points 7 monthsOct 18, 2023 00:58:22 ago (+0/-0)

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[ - ] Hobama 0 points 7 monthsOct 18, 2023 11:26:10 ago (+0/-0)

Good shit. You should make a post about these.

[ - ] purityspiral 0 points 7 monthsOct 18, 2023 10:01:24 ago (+0/-0)

can you still exercise?
You mentioned the stairs, are you still capable of actually doing those crunches (that the stairs felt like)? I ask because I wonder,and your composure may allow it, can you strengthen what has become weak or has the weakness sapped all that remains? I'm curious if your physical body has broken, or if you can work it back to living form. Obviously, if the damage is too great, that is not possible. It is my hope that you will be able to recover. I get that if its the lungs, the strength wont be there, but is it irreversible?

I will tell you this though, I would sooner trust snakeoil.com video ads and buy a cure from Alex Jones, before I would put any faith whatsoever in the useless class of technicians known as doctors. I would try any concoction of civilian invention, before I submitted to chemotherapy, and barring that, I would die slowly before I allowed them to "help" me.

what causes the fibrosis? does anyone know?

[ - ] MasterSuppressionTechnique 0 points 7 monthsOct 18, 2023 11:45:16 ago (+0/-0)

Take some bad guys with you, if you don't mind.

Honestly, if what you're saying is true, it doesn't sound good. I've known a handful of people who worked in industries where they inhaled nasty stuff and had what you described. They did not make it and it happened a lot quicker than you'd expect.

[ - ] heytheremyfriends [op] 1 point 7 monthsOct 18, 2023 12:41:16 ago (+1/-0)

The problem is most fibrotic and emphysematic people have exponential worsening, it's not linear. As the lower floor of FEV1 goes to shit, the upper floor of co morbidities increases. 50% lung volume isn't bad, but when 20% is considered death/cardiac failure level, losing 4% a year increases the chances of death significantly

[ - ] oppressed 0 points 7 monthsOct 18, 2023 13:24:30 ago (+0/-0)

how did you get this problem? did tobacco contribute?

[ - ] deleted 0 points 7 monthsOct 19, 2023 00:09:08 ago (+0/-0)

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[ - ] oppressed 0 points 7 monthsOct 18, 2023 13:25:33 ago (+0/-0)

the solution is to put it in Christ's hands and trust in His timing and will to be done

[ - ] deleted 0 points 7 monthsOct 19, 2023 00:00:08 ago (+0/-0)*

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[ - ] chump 1 point 7 monthsOct 17, 2023 23:25:08 ago (+1/-0)

Try to stay positive, and hang in there brother goat. I will pray for you.

[ - ] deleted 1 point 7 monthsOct 18, 2023 01:45:30 ago (+1/-0)

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[ - ] deleted 1 point 7 monthsOct 18, 2023 09:43:14 ago (+1/-0)

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[ - ] deleted 1 point 7 monthsOct 18, 2023 02:38:44 ago (+1/-0)

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[ - ] Belfuro 1 point 7 monthsOct 18, 2023 04:21:56 ago (+1/-0)

Question. Have you had many teeth pulled or root canals?

I heard a theory.

But yes go carnivore diet and exercise.

[ - ] alolanpikachu2 1 point 7 monthsOct 18, 2023 08:58:38 ago (+1/-0)

What is the theory? I had two wisdom teeth pulled, the lower one was pushing on a molar. I was told the molar has a cavity but I haven't been back because I don't want the toxic filling.

[ - ] olinneserpona 1 point 7 monthsOct 18, 2023 12:20:46 ago (+1/-0)

They still use mercury fillings where you live??

[ - ] Belfuro 0 points 7 monthsOct 18, 2023 21:47:03 ago (+0/-0)

See above if interested

[ - ] purityspiral 1 point 7 monthsOct 18, 2023 10:11:07 ago (+1/-0)

I had a root canal at 16, my tooth then broke because we couldn't afford the crown in time.
They pulled it but it broke to pieces on the way out because Dentist said "you have J-hooks"
He said it was a tiny hook on the tooth end that held the tooth into the jaw, even once broken.
It took 5 hours to get the tooth out and he said if he'd known I had those, he would have ordered surgery instead.

I've had teeth work since then and no other Dentist will acknowledge that J-hooks even exist.
First one to call me JewHook, will also be seeing a dentist.

srsly tho, I wanted to know your theory.

[ - ] observation1 1 point 7 monthsOct 18, 2023 18:03:46 ago (+1/-0)*

not op but chiming in. after They removed your tooth where the root canal was did they spend time scraping your jaw clean? Or did they just kind of suck the blood out? After, did they just leave the tooth out, or did you get an implant?

Typically a root canal forms into an abscess which is basically infected bacteria puss and you cant feel it because your nerve was removed. But you might be in luck if they already removed that tooth, albeit an implant represents same danger. The abscess sits there fucking you up over decades.

I recommend you watch banned documentary "root cause" was once on netflix.

You basically need a dentist who has a beam scan xray machine (most dont) to find out if have abcess but start with the documentary. Ignore shit you see online. You wont regret having watched it

[ - ] Belfuro 0 points 7 monthsOct 18, 2023 21:46:06 ago (+0/-0)

Basically the body has an electrical circuit. The muscles are the generators for it.

The circuitry for each region, organ, passes through the nerves in teeth.

The theory is that teeth are basically fuses.

As long as cells get the right voltage, that is pH level, they can self heal

Rotting or missing teeth disrupts the circuit.

If interested you can see which circuit for your failing body part goes through which tooth and if that lines up with your dental work.

[ - ] TheYiddler 1 point 7 monthsOct 18, 2023 05:42:10 ago (+1/-0)*

What is your occupation? Your diagnosis suggests inhaled contaminants, which are still there preventing healing. Or the exposure has been prolonged over a few years.

Identifying the cause is vital to ensure exposure stops and may suggest an Avenue of treatment.

[ - ] HonkyMcNiggerSpic 2 points 7 monthsOct 17, 2023 23:02:16 ago (+2/-0)

damn dude. Sounds almost like Tuberculosis. Hope you get better.

[ - ] SilentByAssociation 2 points 7 monthsOct 18, 2023 04:56:02 ago (+2/-0)

Beef lung may be worth considering:
https://ancestralsupplements.com/products/grass-fed-beef-lung-w-liver-by-ancestral-supplements-1

Listening to Dr. Anthony Chaffee may also prove to be beneficial for you.

I searched hypoxia and pleurisy Earth Clinic and it didn't disappoint. I'll share the links if you're interested.

Keep your head up.

[ - ] observation1 3 points 7 monthsOct 17, 2023 23:26:32 ago (+3/-0)

what youve been doing hasnt prevented what you got, maybe worth trying something new

Did you work with asbestos when you were younger?

ive read fasting for 36 hours (in one duration just drinking water), twice a month or more, while supplementing with serrapeptese can regrow anything. Its an enzyme, they didnt even know about it until 1972.

Serrapeptase is used in clinical practice to get rid of slime and mucus, sticky deposits, and plaques inside blood vessels. Cuts inflammation in half.

https://invidio.us/watch?v=QG9qTD4heK8

[ - ] canbot 0 points 7 monthsOct 17, 2023 23:40:50 ago (+0/-0)

I don't know if all the links are the same, but I followed one and got a video that is clearly bullshit.

First clue is he refrences "several studies" but doesn't talk about a single one. Does not talk about how it is supposed to work. And does not name any of them.

The second clue is he claims people write in to him to tell him that it worked. People generally don't do that. This is the epotome of hearsay and completely unverifiable and also removes any possibility of followup questions, and if a hole is found in any of the stories he escapes accusations of being a liar by simply saing that is what he was told and is not reappnisble for any lies. That is tha hallmark of snake oil bullshit. And he goes on and on with that shit until I stopped watching.

[ - ] observation1 2 points 7 monthsOct 17, 2023 23:45:35 ago (+2/-0)

By the time it took you to write that you could have spent half on your own volition, at whatever verification method of your choosing.

[ - ] deleted 3 points 7 monthsOct 18, 2023 06:47:52 ago (+3/-0)

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[ - ] deleted 6 points 7 monthsOct 18, 2023 00:09:08 ago (+6/-0)*

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[ - ] heytheremyfriends [op] 0 points 7 monthsOct 18, 2023 00:15:38 ago (+0/-0)

they said no to lung surgery already due to diffuse nature, cant get a transplant with vax so that's out. Pulomonary rehab was useless but theyh loved billing my insurance, and i dont want to get overly dependent on a tank

[ - ] deleted 1 point 7 monthsOct 18, 2023 00:18:33 ago (+1/-0)*

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[ - ] heytheremyfriends [op] 3 points 7 monthsOct 18, 2023 00:21:30 ago (+3/-0)

most transplant centers want full vax compliance and stuff before being admitted, including for COVID. Not happening

[ - ] deleted 4 points 7 monthsOct 18, 2023 00:26:19 ago (+4/-0)*

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[ - ] Hobama 1 point 7 monthsOct 18, 2023 11:25:06 ago (+1/-0)

Just fake it. What do you have to lose? Its just a shitty piece of paper

[ - ] I_am_baal 0 points 7 monthsOct 18, 2023 19:13:28 ago (+0/-0)

Not all states have databases for their vax cards. I don't remember them off-hand, but you should be able to create a fake vax card if you need one.

[ - ] Trope 8 points 7 monthsOct 17, 2023 23:25:36 ago (+8/-0)

Fuck their expensive measuring devices and ability to create a name for every manifestation of inflammation.

Eat beef every day until you are healed. Salt to taste. Get plenty of sun and don’t burn yourself. Move.

[ - ] heytheremyfriends [op] 2 points 7 monthsOct 18, 2023 00:14:06 ago (+2/-0)

i wonder if they get paid to come up with new scary names for this crap. Im sure they day would come when the disease would eventually worsen. The prognosis for these conditions is usually atrocious due to all the underlying comorbidities that can kill you

[ - ] I_am_baal 0 points 7 monthsOct 18, 2023 19:10:04 ago (+0/-0)

Try fasting too, 2-5 days at a time, find your sweet spot. That fixes all sorts of shit. And eat nutritious as fuck food; beef and salt is a good recommendation, but we're all a little different. Just pay attention to how your body reacts, and kick all of the processed junk out of your life.

BPC-157, TB500, and TA-1 are also all worth looking into. They're peptides. The first two are frequently used in combination, known as the "wolverine combo" for it's incredible healing properties. People often heal soft tissue injuries that would require surgery otherwise. TA-1 I'm a little less familiar with, but it interacts with the immune system. If there's some subversive kike infection going on in there or an auto-immune problem, TA-1 might help.